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Managing Day to Day

PROMACTA

Managing Day to Day

Tips for children living with chronic ITP1

Depending on your child’s platelet count, he or she may have to avoid certain activities. The good news is that most children with chronic ITP can:

  • ride bikes (with a helmet)
  • go fishing
  • play Frisbee
  • play golf
  • go for a hike
  • go for a walk
  • go swimming
  • go jogging

You, your child, and your health care team will decide what you’re all comfortable with. When you do need to limit certain activities, find fun and interesting alternatives.

Tips to reduce chronic ITP stress2

When it comes to rare diseases like chronic ITP, communication is power.

 

  • Listen to your child. Sometimes an open ear can be invaluable
  • Be honest and open about what’s coming next. Fear of the unknown can be more stressful than expecting something negative
  • "Rehearse" scary situations (such as doctor visits) beforehand so your child is ready when they come
  • Encourage your child to find and spend time with other children who have chronic ITP or other illnesses
  • Talk about ITP openly and often so your child feels comfortable talking about it too
  • Highlight your child’s strengths and help develop the skills or talents that are not limited by chronic ITP
  • Give your child some control during doctor visits. Let him or her chat with the doctor or even choose which arm to get blood from
  • If you're concerned about your child’s mood or behavior at home or school, talk to your doctor. Sometimes a therapist or support group can help

References

1. Ponte M. ITP in children: steps to raise safe, happy kids. Guide2ITP website. http://guide2itp.com/raising-safe-healthy-children-itp. Published July 2011. Accessed September 15, 2017.

 

2. American Academy of Pediatrics. Living with a chronic illness or disability. 

https://www.healthychildren.org/English/health-issues/conditions/chronic/Pages/Coping-With-Chronic-Illness.aspx. Accessed September 15, 2017.