Managing Day to Day

PROMACTA

Tips for children living with chronic immune thrombocytopenia (ITP)

Just because your child has chronic ITP doesn't mean they can't participate in fun activities. Most children with chronic ITP can:

  • ride bikes (with a helmet)
  • go fishing
  • play Frisbee
  • play golf
  • go for a hike
  • go for a walk
  • go swimming
  • go jogging

 

You and your child can work with your health care team to figure out what you're comfortable with. When you do need to limit certain activities, try to find fun and interesting alternatives.

Tips to reduce chronic ITP stress

Depending on your child’s platelet count, they may have to avoid certain activities. The good news is that most children with chronic ITP can still live relatively normal lives.

 

  • Listen to your child and make sure they know they're being heard
  • Be honest and open about what’s coming next. Fear of the unknown can be more stressful than expecting something negative
  • "Rehearse" scary situations (such as doctor visits) beforehand so your child is ready when they come
  • Be sure that your child's teachers, administrators, and school medical staff know that chronic ITP may affect your child's health and ability to participate in certain activities
  • Get involved in a support group where your child can meet other children who have chronic ITP
  • Talk about ITP openly so your child feels comfortable talking about it too
  • Highlight your child's strengths and help develop the skills and talents that are not limited by chronic ITP
  • Give your child some control during doctor visits. Let him or her chat with the doctor or even choose which arm to get blood from
  • If you're concerned about your child’s mood or behavior at home or school, talk to your doctor. Sometimes, a therapist or support group can help